Stellan's Name Gallery

Sebastian & Ady made it to Stellan's Name Gallery on MckMama's blog! I'm praying so hard for this little guy right now as he has had such a bad day. I'm hoping that his little heart can hold out until they can find the right course of treatment. Lord, help us to understand your plans for this sweet little guy.

From MckMama's blog today...

Stellan is not doing well. I am not doing well. This has been our baby's worst day, health wise, since coming to Children's Hospital last Sunday.

Stellan's heart is still in SVT, and his heart function is slipping away. He is not perfusing to his extremities well anymore at all. At times, his pulse cannot even be felt in his feet whatsoever. He is pale, extremely irritable, and his mother is trying hard to keep from being a sobbing, wretched mess in front of him. I had two dreams last night about being trapped in different buildings; it's no secret to say I feel trapped in our current, extremely uncertain circumstances.

As I step away from the madness that is his PICU room at this moment, to breathe, gather my thoughts, throw myself at Jesus' feet, and try to keep from losing it in front of Stellan, a new course of treatment for our son is beginning. Lots of big decisions about his care, about what doctors he sees, and about what his treatment plan will now be are in front of us with this new change.